Ehlers Danlos Syndrome Type 3: What to expect at your first physiotherapy appointment

Hello everyone, For a long time, and I mean a long time I put off physiotherapy. Why? – I hear … More

I Think I have EDS. What Happens Next? The Ehlers Danlos Series

You have been feeling sick for a very long time.  Had many routine tests come back clear. Yet, you have … More

Go Fund Me: Morgan’s EDS Mobility Aids

Hello everyone, Some of you may or may not know that I am suffering from an incurable connective tissue disorder … More

23 Ehlers Danlos Syndromes Life Hacks: The Ehlers Danlos Series

  Although, being diagnosed with Ehlers Danlos Syndrome, has given me slightly more sanity. Living with this illness, like many … More

15 Things Medical Zebras have Learnt to Love about their Incurable Illness

15 Things Medical Zebras have Learnt to Love about their Incurable Illness: The Ehlers Danlos Series

If you haven’t heard of Ehlers Danlos Syndrome – you are not alone. Ehlers Danlos Syndrome is a rare, incurable … More