If you haven’t heard of Ehlers Danlos Syndrome – you are not alone. Ehlers Danlos Syndrome is a rare, incurable connective tissue disorder that attacks many systems of the body that is caused by a defect in collagen. Suffers on Ehlers Danlos Syndromes are known as “medical zebras” because it symbolises a rare illness in the medical profession.
With so many negatives associated with being diagnosed with Ehlers Danlos Syndrome including: chronic pain, chronic fatigue, joint dislocations, cluster headaches, bruising, bladder and gastrointestinal pain, low blood pressure and photo-sensitivity … I am going to share some positives other patients and I have learnt to love whilst living with Ehlers Danlos Syndrome.
15 Things Medical Zebras have Learnt to Love about their Incurable Illness
- I can do my own dress zipper up and down which is super handy for getting ready.
- I can use my hand as a comfortable face rest anywhere I go.
- Ehlers Danlos Syndrome has taught me not to judge other people on face value.
- I can sleep in any position, pretty much anywhere.
- I don’t need to buy Halloween face paint – the bags under my eyes are big and dark enough.
- There’s never an itchy spot on my body I can’t reach.
- I can type incredibly fast – which is helpful to meet deadlines.
- People who care about you will stay in your life and the rotten eggs won’t.
- I have got back into some hobbies that have helped give me a purpose – Art and blogging.
Other Patients Thoughts
- “It makes me more understanding when others are struggling, and I can emphasise”. – Robyn Frances Tipple – Smith.
- “I love that I can educate people and make new friends with Ehlers Danlos Syndrome known as Zebras”. – Abby Cappleman.
- “It forces me to slow down and focus on what is really important. I get to spend more time with my kids than if I was busy all the time” – Carol Youree Rothage
- “I love that I look younger due to stretchy skin”- Fiona Willis
- “It makes me a great dancer” – Justine Hills
- “My skin is super soft, no moisturiser needed” – Ashley Baliou.
Sharing is Caring
I would love if you shared this post to raise awareness of Ehlers Danlos Syndromes and spread a sprinkle of happiness to those suffering from the condition.
Have your Say
Do you suffer from a chronic illness and have learnt to love something about your condition, since you were diagnosed? – If so I would love to hear about it below.
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