Hello Everyone,
I thought I would have a go at poetry to express my thoughts. I suffer with Dyslexia so it may be rubbish but I wanted to share with you what I came up with.
Lots of Love,
Misfortunate
As I waddle like a penguin, my defected collagen impersonates a gremlin.
Cracks, in and out my joints loudly scream,
Without caution, my body bends and breaks again.
Left, right, up and down circular motions,
Whether I stand or lay, my fragile skin remains broken.
Black, blue, green and purple, all beautiful shades in a rainbow,
All out on show for the world to see that my body has taken another blow.
As the Earth orbits around the globe,
I travel around many different places,
Not visiting fun landmarks but wasting hours staring at hospital walls.
Listening to others search for a cure, with saddened faces.
Doctors orders, another day of rest is required.
I am summoneded to debt or to battle on with tolerance.
Anxiety grows inside of me poisioning my veins
Why I am so differently wired?
Infection after infection, chronic illness is a true test of resilience.
Who will remain your friend and who will abandon you.
No choice but to adapt to my surroundings and welcome transilience.
Deep breathes in and exhales out, I must not snap and break as easily as bamboo.
Everyday I pop pills like smarties to conquer on,
Thinking about the future and what is to come.
An overactive mind, questioning is it fair to pass EDS on to a daughter or a son.
One second , I feel everything and the next I am benumbed.
Ehlers Danlos Syndrome you have taken part of my mind, part of my soul.
Yet, now I accept you, you will always be there.
You have had the power, all the control.
Now I am going to fight you to live, not just exist
Even in those hard times of sorrow and despair.
Like what you see?
Brains & Bodies 
Those were beautiful
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Thanks xx
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Writing is an excellent therapy tool. Beautifully pained, she writes from within
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Thank you Erica x
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It always helps to write out your feelings. I never thought about poetry to help heal.
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I didn’t until a couple of days ago either Stephanie haha xx
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Living with a chronic condition can be debilitating and affect every part of one’s life. I am grateful to read your touching poem which is the best way for you to express your feelings.
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Aww thank you for your kind words Marije xx
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A chronic condition can really get you down but focusing on your positives is an awesome thing to do. Writing is a great tool also to get these feelings out like you’ve done here with this poem. Thanks for sharing this!
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Thank you very much Shan , it is a great distraction xx
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i never heard of Ehlers Danlos and looked it up. I think journaling and writing poetry is a good way to express oneself and let go of many thoughts. all the best 😀
xx
maliblue
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I probably should of included a hyperlink that goes to an explanation , as I have in other posts. Thank you for looking it up Mali xx
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Not very good at writing so kudos to you. It’s always wonderful to be able to express our feelings like that.
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I think it doesn’t matter whether you are good or not at writing Joline , I find it is all about the thought process xx
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Great poetry. It’s wonderful how you have an outlet to release your feelings. Writing is definitely therapeutic. All the best to you
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Thank you very much x
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That is brilliant from a fellow poet who has eds i can relate to every word x
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Thank you Michelle , I am happy at least it is relatable x
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It’s really great when you can write your feelings down to express yourself clearly and share your experiences with others.
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Thank you x
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This is so a wonderful poem. And so beautifully written. If I didn’t know about your condition I would never thought that you have any syndrome or dyslexia.
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Aww thank you Helene for being so kind. Unfortunately, that is the case with an illness that is invisible on the most part x
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Writing is a great way to let out some frustrations. Its a good way to just let it all out for even just a moment.
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Yes, I agree Tiffany I write loads when I get an outburst of creativity and then none for a while xx
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I’m so sorry for all you have been through. I guess you have the answers of a diagnosis, but (by the sounds) not much you can do about it beyond that? I spent 2/3 of my life trying to figure out why my body didn’t work like it was “supposed” to, and only a few months ago FINALLY got the diagnosis I’d been waiting for, to explain all the broken bones and joints-falling-apart and surgeries over the years. There is only one medication to compensate for the deficiency that I now know is caused by a genetic mutation (and that I now know is at the root of all my troubles) – I am now on this medication, and pray that you can similarly find some answers to help you live better soon. It is truly a miracle to have your body NOT betray you all the time, for what feels to me like the first time in my adult life!
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Hi Flossie , I don’t have all the answers yet unfortunately ! I do in terms of managing my EDS but not my BPD although that is curable but the main problems are with mast cell activation disorder , IBS and my chronic bladder syndrome . Although doctors are working hard for me this year . I glad you finally got your answer but it is horrible it took you a long time to find out what was wrong too. I am on the most complex diet and wish an elimination and low histamine / librant diet would work with blockers and stabilisers but my body is suspected to be fighting a infection in my gut. What medication are you on ? Xx
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I am sorry to hear about your diagnosis. I used to write a ton of poetry during the most difficult time of my life – it really helped.
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Thank you , it is one of many but I suppose it means I have more to write about haha . I am glad it helped you to x
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I was misdiagnosed with endometriosis a few years back. They dont know what eas causing my chronic pain but it mysteriously disappeared after about 2 years. Its hard dealing with an ongoing issue but I commend you openess about your feelings. Your poem was fantastic.
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That’s amazing it disappeared ! Thank you very much 😘 xx
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It was extremely well written.
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Aww thank you it means a lot x
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I meant what I said, you have great talent, that poem you wrote was fantastic.
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Donna Hudson I only recently just got into poetry so thank you ! I am releasing one every month about mental health in November and more about other illnesses I have in December xxx
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Wow! That is awesome!
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Beautiful poem!
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Amazing!!!!!
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